SUPPORT GROUPS
Although AmeriPath offers a variety of disease specific information and resources, additional information can be found through a variety of national organizations who specialize in education, support and research of these diseases. Information on these groups including contact information and website addresses can be found below.
GI Support
Hematology/Oncology Support
Urology Support
Women's Health Support
GI Support
Hematology/Oncology Support
Urology Support
Women's Health Support
General Resource Support
National Cancer Institute: 800.4.CANCER
www.cancernet.nci.nih.gov
The Cancer Information Service (CIS) and Cancernet are National Cancer Institute programs which provide a nationwide telephone service and web site for cancer patients and their families and friends.
American Cancer Society (ACS): 800.ACS.2345
www.cancer.org
The American Cancer Society (ACS) is a voluntary organization with a national office in Atlanta Georgia, and local facilities across the country. It supports research, patient education programs, and other services for family members, as well as free booklets on bladder cancer and home care.
National Institutes of Health (NIH): 301.496.4000
www.nih.gov
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.
Center for Disease Control (CDC): 800.311.3435
www.cdc.gov
The CDC is one of the major operating components of the Department of Health and Human Services. CDC´s top organizational components include the Office of the Director, the National Institute for Occupational Safety and Health, and six Coordinating Centers/Office.
GI Resource Support
American Gastroenterological Association, Digestive Health Foundation: 301.654.2055
www.gastro.org
Access to expert panels, support groups and detailed diagnostic and treatment information.
Center for Disease Control: 1.888.MY.ULCER (1.888.698.5237)
www.cdc.gov/ulcer
American College of Gastroenterology: 301.263.9000
www.acg.gi.org
American Gastroenterological Association: 301.654.2055
www.gastro.org
Crohn's & Colitis Foundation of America: 800.932.2423
www.ccfa.org
Hematology/Oncology Resource Support
American Society of Hematology: 202.776.0544
www.hematology.org
The mission of the American Society of Hematology is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Aplastic Anemia and MDS International Foundation, Inc.: 800.747.2820
www.aamds.org
The Aplastic Anemia and MDS International Foundation is the oldest and largest patient advocate and support organization for aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other bone marrow failure diseases.
Association of Cancer Online Resources (ACOR): 212.226.5525
www.acor.org
ACOR is a unique collection of online communities designed to provide timely and accurate information in a supportive environment to everyone affected by cancer and related disorders.
Cancer Care, Inc.: 800.813.4673
www.cancercare.org
CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.
Cancer.Net:
www.cancer.net
Cancer.Net brings the expertise and resources of the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians, to people living with cancer and those who care for and care about them.
Candlelighters Childhood Cancer Foundation: 800.366.2223
www.candlelighters.org
The mission of the Candlelighters Childhood Cancer Foundation is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
International Myeloma Foundation: 800.452.2873
www.myeloma.org
The International Myeloma Foundation is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
Kids Konnected: 800.899.2866
www.kidskonnected.org
Kids Konnected's mission is to provide friendship, understanding, education, and support for the children who have a parent with cancer, or have lost a parent to cancer.
Group Loop: 202.659.9709
www.grouploop.org
Group Loop is an innovative program of The Wellness Community to provide online support for teens with cancer and their parents.
International Waldenstrom's Macroglobulinemia Foundation:
www.iwmf.com
The International Waldenstrom's Macroglobulinemia Foundation provides information, resources, a communications network, and experience on how to live with Waldenstrom's Macroglobulinemia, plus encouragement to those affected by this disease.
Leukemia and Lymphoma Society: 800.955.4572
www.leukemia-lymphoma.com
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The mission of LLS is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Lymphoma Research Foundation: 800.500.9976
www.lymphoma.org
The Lymphoma Research Foundation is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease.
MPD-Net:
www.mpdinfo.org
MPD-Net is an online resource for information on myeloproliferative disorders - agnogenic myeloid metaplasia (primary myelofibrosis), chronic myelogenous leukemia, essential thrombocythemia, myelodysplastic syndrome, myelofibrosis and polycythemia vera - for patients, family, friends, researchers, and physicians.
Myelodysplastic Syndromes Foundation: 800.637.0839
www.mds-foundation.org
The Myelodysplastic Syndromes Foundation is a multi-disciplinary, international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes.
National Coalition for Cancer Survivorship: 301.650.9127
www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for al Americans and empowering cancer survivors.
Urology Resource Support
The National Kidney Foundation, Inc.: 800.622.9010
www.kidney.org
The National Kidney Foundation provides a nationwide telephone service and website for patients with kidney stone disease and their families and friends. Numerous state chapters also have web sites available to provide regional information and reference materials.
Prostate Cancer Foundation: 800.757.CURE
www.prostatecancerfoundation.org
The Prostate Cancer Foundation (PCF) is the world's largest philanthropic source of support for prostate cancer research. The PCF has a single goal: To find better treatments and a cure for recurrent prostate cancer.
The Urology Channel
www.urologychannel.com
Malecare: 212.673.4920
www.malecare.com
Malecare is a nonprofit group of experienced patients and doctors, many of whom are diagnosed with prostate cancer or testicular cancer, writing weekly updates on treatment choice strategies and how to live with the consequences of those choices.
US TOO! International: 800.808.7866
www.ustoo.org
This nonprofit support group organization offers descriptions of treatments, an online newsletter, a glossary of medical terms and information on local support groups.
Women’s Health Resource Support
National Cervical Cancer Coalition/National HPV Cancer Coalition: 800.685.5531
www.nccc-online.org
The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease.
American College of Obstetricians and Gynecologists (ACOG): 202.638.5577
www.acog.org
Founded in 1951 in Chicago, Illinois, ACOG has over 52,000 members and is the nation's leading group of professionals providing health care for women. Now based in Washington, DC, it is a private, voluntary, nonprofit membership organization.
